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If you’ve recently been told you’re no longer eligible for certain NDIS supports, even ones you’ve used for years, know that this is also happening to others.

Recent changes to the NDIS mean participants can now only receive supports linked to the impairments listed in their original access request. This shift is having a real impact, especially for people living with multiple conditions.

What’s changed?

Previously, the NDIS advised that funding must relate to your disability. As of late 2023, this has been formally legislated and supports must now directly relate to the impairment/s you registered when you first applied. The NDIS is reviewing plans and checking that funds are being spent in line with this rule.

If a support doesn’t clearly connect to the impairments in your original access request, it may be removed from your plan, even if it’s something you’ve used for years.

You can read the updated rules in full here: https://www.ndis.gov.au/about-us/operational-guidelines/access-ndis

Real impacts for real people

We’ve seen a growing number of people in the blind and low vision community affected by this change.

Jane Britt, a Vision Australia client who is deafblind, says the new NDIS rules make it harder to get support for her needs. She’s frustrated that her disabilities are treated as separate, when they’re deeply connected.

“It’s exhausting,” Jane says. “We deserve a system that sees the whole person.”

Her story and so many others like hers are part of a growing pattern that is deeply concerning to many participants, advocates and support providers.

Why is this happening?

The changes are part of a broader NDIS review and reform process. The NDIS is trying to tighten criteria, reduce duplication with mainstream services (like the general health system), and focus support on ‘disability-related needs’ that are considered permanent and significant.

While the intent is to make the system more sustainable, the result for many has been confusion, frustration and unmet needs.

What can you do?

  • Review your access letter and diagnosis. If you were diagnosed with more than one impairment at the time of your original access request, check whether it was included in your application. If not, you may need to re-apply or provide updated evidence.
  • If you’ve developed a new condition since joining the NDIS, you may need to submit a request to have it recognised in your plan.
  • Gather supporting documentation. Health professionals can help confirm the link between your condition and your support needs.
  • Talk to your Planner or Local Area Co-ordinator. If you think a support is essential to your daily functioning, raise it. Sometimes supports can be categorised differently or sourced through other systems.
  • Reach out for disability advocacy support.

Add your voice to the conversation

Vision Australia and other providers are actively working to raise awareness of these impacts and push for more inclusive, co-designed solutions as reforms continue.

If you’ve been affected by this change, we want to hear from you. Your voice helps shape better outcomes for everyone in our community.

Contact Vision Australia on 1300 84 74 66 or visit us online at visionaustralia.org

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